Live life on purpose, despite it all.

I remember hearing Henry’s phone ring from downstairs. We were on the third floor, my sister and I. We had just gotten home from the hospital and were getting ready for bed. I was wrecked with guilt telling her I should have done something sooner. That maybe my mom would be better off if I’d done something sooner. She was trying to console me. But I knew I would never forgive myself.

I could tell in Henry’s voice that this was not good. I was not ready for what was about to happen. It felt like years passed as I waited for him to climb the two flights of steps to get to us.

“This is it,” he said. “We have to go back to the hospital.”

I didn’t know how to do anything after that. I knew we needed to get in the car as soon as possible but I couldn’t figure out how to decide what clothes to put on. What clothes do you wear to say goodbye to your mom forever? I wore a butterfly t-shirt and the blue “you are my sunshine” scarf she gave me, as if wearing something she gifted me could bring her back to life. We drove so fast to get there but it was still too late, and we all knew it running into the hospital, past security trying to stop us. We told them our mom was dying and they let us go.

Nothing could ever prepare me for the way that room felt when we finally got there. The silence. What once was filled with beeping sounds from the machines that were keeping my mom alive were no longer. The room was so cold. My soul left my body in that instance. I didn’t know how to be alive or function in a world that my mom was dead. I needed her so badly in that moment. I remember looking at her lifeless body, hoping her spirit would lift from it and wrap me in one last hug. I needed to be comforted by my mom, and in that moment I realized I would never be comforted again, not in the way I needed and wanted. I had never felt so alone in a room full of people.

And, somehow, four years later, I’m still here. I wish I could say things have gotten better since then but they haven’t. I’ve lost four babies and the most important person to me, my mom. I have one living miracle who I have trouble enjoying because I battle with the trauma of it all. My depression can be crippling and my anxiety makes it hard to function.

The memories of her death, and the death of my babies haunts me.

A part of me died when my mom died. More parts of me died every time I heard those dreaded words, “I am sorry but I can’t find a heartbeat.” I thought life would eventually get easier but I’m realizing that’s not the case. I just have to accept it, but I’m having a hard time doing that. How do we accept the unfairness of it all? How do we create moments of happiness when the deepest parts of our soul are broken beyond repair? How do we survive in a life that is so fragile?

I always feel like I need to wrap these stories and thoughts up with a tidy bow but that’s not what’s real. What I know to be true is that I need my mom, and I know that won’t happen so I am trying to find alternative ways of comfort. I’m trying to accept how others can show up for me.

But I’m stubborn like her. If I can’t have her, then I don’t want them.

I know that I need to live again. That’s what she would want, but I don’t know how. I don’t know how to live in this world of mine that is filled with so much pain.

But I also don’t want to die like this. I keep waiting for things to get better but maybe the problem is, they never will. Maybe I just have to live anyway and find a way to accept that.

Maybe I just have to live life on purpose, despite it all?

I love you infinity, Mom. Send me a sign?

Xoxoxo

In Good Times and in Bad

6 years. 🖤

On October 7th, Henry and I are celebrating our six year wedding anniversary. I honestly don’t know how I feel about this. On one hand, I am so grateful to have him as my partner through all of the ups and downs of life. One the other, I am disappointed that almost the entirety of our marriage has surrounded some sort of trauma that was specifically because of me.

The Plan.

Here’s what my “plan” was for the beginning of our marriage:

  • Enjoy the first year of marriage.

  • Get my masters degree before having children. I knew, for me, I would not do it after I had children, or at least that’s what I thought to be true. I enrolled in a rigorous, full-time, 10-month masters program at the University of Pennsylvania, while also working full-time. Looking back, I was completely burnt out.

  • During the time I was in my masters program, my plan was to get pregnant so that I could still enjoy my Graduation but not waste any time growing our family. I didn’t want to feel guilty for chasing after a dream of mine, so I thought this was the perfect compromise.

  • I would have our first child at age 32 so that I could have our second before I turned 35 (the age where in my mind, I would no longer want/be able to have children.)

Here’s what actually happened:

  • The first year of marriage was hard, but not because of Henry. I struggled a lot with personal demons and wanted to really sort them out before having children.

  • It took me close to 100 days to get a cycle back after I came off birth control. I remember feeling agony during that time of waiting because time was passing by, time that I couldn’t afford (this is how I have continued to feel throughout my life, specifically as it relates to family building and pursuing my dreams).

  • We did not get pregnant during the time frame I allotted. A friend of mine told me to maybe look into fertility specialists just to get an appointment on the books because she had heard it could take a while. I scheduled one for the day after my graduation from Penn.

  • My mom died suddenly in April 2019 and my world, as I knew it, was over. My mom died about a month before I was set to finish up classes and complete my degree. I was a total mess. In addition to not being able to think straight, I blamed myself for my mom’s death and was wrecked with guilt. This feeling would follow me until now.

  • I got a phone call before my fertility appointment was scheduled in May 2019 that it needed to be rescheduled. The next available one wasn’t until September.

  • After our first fertility appointment, I had an HSG done which showed that I had a blocked fallopian tube. My doctor suspected I may have endometriosis.

  • In November 2019, I had laparoscopic surgery done, which showed I did not have endometriosis. Rather than removing my tube (which in her defense, I told her I wanted my tube if she could unblock it), it was still there and would continue to cause infertility issues.

  • In February 2020, after a second HSG which proved the surgery did not work, Henry and I got pregnant. In March, we found out they were twins! In late April, we found out I had my first missed miscarriage and lost both of them.

  • Covid was taking over the world at this time so I had to have a MVA procedure without Henry by my side.

  • It took another 100 days for my cycle to return. In July 2020, we started doing IUI treatments. The first one didn’t work, the second one was cancelled because all of the follicles were on the blocked side, and the third one, which was in late September 2020, worked!

  • Because of Covid and my own trauma, I suffered from some of the worst anxiety I have ever felt during this pregnancy. Despite that, C.C. was born in June 2021. She was considered SGA so there was a lot of fear and anxiety during the first year trying to make sure she was adequately nourished (something I still struggle with since she’s such a picky eater!)

  • In December 2022, I found out I was pregnant again! We had been trying for a few months but it was a welcome surprise. In March 2023, at our 14 week appointment, we found out the baby’s heart had just stopped beating. He was measuring at 14 weeks but no heartbeat. I named him Brighton Daniel. To this day, we are not sure what happened but I tested positive for a virus called parovirus and that is what we ultimately landed on was the reason (however, for those of you who have miscarried you know there is rarely ever an answer, even when there is). I had a D&E for this.

  • Following the D&E, I had to have a hysteroscopy in April 2023 to remove scar tissue. I was then placed on hormone therapy to help heal my uterus.

  • In June 2023, we found out we were pregnant again. This time was a shock because my cycle hadn’t even returned yet from the last miscarriage. We welcomed this miracle and thought this was our stars aligning. Everything we went through led us to this moment. Sadly, at our 10 week appointment, we found out we had lost that baby too. Another boy. For this, I had a D&C. The diagnosis for this miscarriage was triploidy and a partial molar pregnancy. I am still in the process of getting blood tests to make sure the pregnancy levels are going down. If they do not, then it can form into a rare cancer needing chemotherapy for treatment.

  • We’re now in October 2023 and I am 36 years old. I guess you could say I am not thrilled with how things have turned out. So much pain and trauma. Everyone around me tells me I should be grateful for what I do have and, believe me, I am. But I feel like I can’t catch my breath because of the weight of trauma on my chest.

So, yeah, six years has gone by and I know for sure that the person Henry married is not the same person. Not even close. That person had big dreams, believed anything was possible, exercised daily for her mental health, woke up early to get the day started, loved hanging out with friends and families, felt like she could touch her dreams of becoming a published author, and was, overall, proud of herself. She was young and believed the best was yet to come.

This person? This person is putting all of her energy into surviving, and that’s it. All of the above attributed have fallen by the wayside, and I feel like I am fighting a fight I will never win. Trauma has gotten the best of me, and I just want to go back to the woman that married my husband. I didn’t sign up for this. We didn’t sign up for this. All of this feels unfair to him. Every day he has to watch me fight to overcome my own grief, which I know must be heartbreaking for him. I am sure he wants his wife back. The one he said “I do” too. Not this beat up version.

I know we said, “in good times and bad,” but I never could have imagined that there would be so much bad. More than half of our marriage has been one tragedy after another. Sometimes I think he’d be better off with someone else. Someone who doesn’t carry all of this baggage. Someone who isn’t struggling with crippling grief.

Mom, it’s been hard for me to watch my wedding video because hearing your voice brings me to my knees. The part where Daddy says, “Me and your mother, Bonnie, we’ve been together for almost 48 years. I hope you have the same longevity.” And then you follow up in that video with, “I just want her to have that happiness and innocence and just loving each other, good or bad, and happily every ever. It’s just…just a beautiful thing.” I wish you were here to help me get back that “innocence.” Get me back to the person I was before, before all of the trauma hit. I know you were a fighter, and you’d expect that same mentality from me, but I am tired. I don’t feel like I have any fight left.

I am not sure if I needed to write this, just to hear that message from you. I am not sure I would have paused to listen to that part of the video again, but I’d like to think now that it was a sign from you. That marriage was never meant to be perfect and easy. I know it wasn’t for you and Daddy, but to hold on to that friendship you talked about. You always said, “marry your best friend” and now I know exactly what you meant. Even though you and Daddy had 48 years together, it still wasn’t enough. It could never be enough.

Love you, Mom (and love you, Henry!)

Happy six years to my husband. Thanks for loving me through all of the good and the bad.

Hindsight is 20/20. Death is permanent.

They say hindsight is 20/20. I am sure we all know this to be true - a relationship gone wrong or a career move that wasn’t quite right. Lately, in my life, hindsight has been devastating because I can never make right what I learned because of death. Death is permanent. You cannot go back on death. Once death happens, there is no undoing it.

My mom died suddenly from a ruptured brain aneurysm on April 9, 2019. We just honored her four year anniversary, which was ironically on Easter Sunday this year. You can read what happened in depth here. Basically, one minute she was perfectly healthy texting me that she was excited to hang out later and the next, she was seizing on a stretcher on our way to the hospital. Almost four years later and my mind still has a hard time grasping the reality of that situation. That my mom is truly gone and we had no warning, no way of knowing what was happening until after the damage was done, after she was dead.

I struggled with extreme guilt for a long time after that. I still do. Could I have saved her? Should we have taken her to the hospital sooner in the day when she started not feeling well? Should we have pushed more for her to go to the doctor? Yes, we probably should have but you know what? There is nothing we can do now. She is gone and that is a really hard thing to accept.

My mom is dead and I can never get her back. My daughter will never know a life with Cak Cak. I will never feel another magnificent hug from her. All because of an undiagnosed brain aneurysm that ruptured. In hindsight, there are so many things I could have done differently that day, and I will carry that guilt with me for the rest of my life.

Seven weeks ago, I was told my baby had died at my 14 week appointment. A baby who, two weeks prior, had a perfect heartbeat and was kicking around in my belly at 12 weeks. We were in the “safe zone” or so we thought. He was a baby boy. I named him Brighton Daniel, and I had already made plans of him being a little brother to C.C., a cutie little sneakerhead to Henry, and the perfect addition to our family.

That was all taken from me too. A few weeks ago, I learned that it could be because of a common virus that I did not have immunity too, that I didn’t even know existed. There is no way of knowing if this was the cause of my baby’s demise but it is the only thing that came back positive. Everything else, including chromosomal, came back negative. I was asymptomatic, nothing to suggest I was even remotely sick, aside from the intense morning sickness I was experiencing. If I would have known that this virus posed a threat to me, I surely would have taken measures to protect myself, just like I am sure we would have done everything possible to save my mom from her brain aneurysm before it ruptured. But, again, I didn’t and now I am left with the consequences.

The chances of getting sick during pregnancy are pretty high but the chances of losing your pregnancy because of a common cold or children’s illness are pretty low. The fact that this stupid virus could have been the reason that I lost my desperately wanted pregnancy is infuriating. Statistics have not been on my side lately. I am so tired of people and doctors spewing out statistics when in reality, numbers don’t mean anything to an individual. Tragedy can strike at any time regardless of the statistics associated.

My mom lived life freely. She taught me to live life freely as well. All of that changed the day she died. This pregnancy, I felt safe. I didn’t feel like I needed to live in a bubble like I did with C.C. But I was wrong. If I lived in a bubble, then maybe my baby boy would still be alive. If my mom knew she had a brain aneurysm, maybe she’d also still be alive. I don’t know how this will affect my life moving forward. I want to continue to stay true to who I am - someone who takes risks, who is not scared of life. But how can I do that when life has continued to tell me that I am not invincible?

I am tired of not having information until it’s too late. I am tired of people and babies dying and being ripped away from me because of information I did not know even existed. I hate when people say that this is unfair because my life has been a series of unfair events. Nothing has come easy for me. Everything is hard and I am left to travel through life lost and afraid of the next tragic thing that will happen. Life after loss doesn’t just keep going. You pay a price and that price is never feeling confident that things will be okay for you.

An unknown brain aneurysm took my mom. An unknown virus may be the reason we lost Brighton. Hindsight sure is 20/20 but what do you do with hindsight when you can never make right the things that went wrong?

The aftermath of this miscarriage has been especially heartbreaking. I think I completely blocked out what it was like after we miscarried the twins, but because I was further along this pregnancy, there are definitely more things to be triggered by. For example. I was doing laundry for the first time since finding out we miscarried and most of my pants were maternity pants because I very much already had a pregnant belly.

I opened up my agenda planner for the first time since finding out we lost our baby boy, and I have a space to write down what I am grateful for each day. When I opened it up I realized the last thing I wrote down was that I was grateful for a healthy pregnancy and a baby boy on the way on the day we found out Brighton no longer had a heartbeat. I started that day excited to see my baby boy kicking, just like I started April 6, 2019 with a text to my mom that I was excited to see her.

I recently found out I’ll need to get a hysteroscopy to remove retained “products of conception” (ie: they didn’t get everything out during the D&E). I feel like we are running out of time.

There are days where I feel okay, and days where I am absolutely broken. The sight of a pregnant woman or a coworker announcing they are expecting sends me spiraling. I have cried more tears in bathroom stalls the past few days than I can count. Here’s what I have found to be true though:

You can be strong and also self-sabotage because it feels like the only way to deal in the moment.

You can be healing but also silently crying out for help.

You can be consumed with grief but also want those around you to mention the names of your loved ones who are dead.

You can be self-aware and still have moments where you completely lose yourself.

You can be healthy and self-deprecating.

You can be hopeful and so angry.

You can be happy for someone else and so sad for you.

You can be gracious yet so hard on yourself for feeling like it’s all your fault.

The list goes on…

The reality of the situation is I’ve been spiraling for weeks since finding out about losing Brighton. This is a nightmare that I can’t wake up from and I might have just hit rock bottom.

Mom, I hate that you were taken from us because of a stupid brain aneurysm we didn’t know existed - that you didn’t know existed. You were torn from me so quickly, no chance to say goodbye. What would you tell me now? Somehow I have three babies in heaven and one on earth. Another stone to add to my collection. Three stones sitting side by side - the only physical representation that their lives mattered to me.

When will the heartache stop? How am I supposed to just keep going when it feels like so much has been taken from me? Please let me know.

Love you infinity.

Love,

Your sweetheart

xoxo